1 00:00:00,000 --> 00:00:01,330 2 00:00:01,330 --> 00:00:02,550 I'm Vikram Jaswal. 3 00:00:02,550 --> 00:00:04,350 I'm an associate professor of psychology 4 00:00:04,350 --> 00:00:06,120 at the University of Virginia. 5 00:00:06,120 --> 00:00:09,210 For the past three years, I've been teaching this two semester 6 00:00:09,210 --> 00:00:12,450 seminar called the Science and Lived Experience of Autism. 7 00:00:12,450 --> 00:00:15,900 We try to explore the tension between what the science says 8 00:00:15,900 --> 00:00:19,590 about autism and what the lived experience of autism is like. 9 00:00:19,590 --> 00:00:22,500 We work as a class of about 16 students 10 00:00:22,500 --> 00:00:25,140 with a partner cohort of non-speaking autistic 11 00:00:25,140 --> 00:00:26,010 individuals. 12 00:00:26,010 --> 00:00:27,930 They don't use spoken language reliably 13 00:00:27,930 --> 00:00:29,760 or, in some cases, at all. 14 00:00:29,760 --> 00:00:32,700 And something that happens as these guys are spelling out 15 00:00:32,700 --> 00:00:36,300 their responses is that the non-autistic participants, 16 00:00:36,300 --> 00:00:38,430 we all learn to slow down. 17 00:00:38,430 --> 00:00:41,190 What we do is we come prepared with a reading or maybe 18 00:00:41,190 --> 00:00:42,820 a video clip that we've all watched. 19 00:00:42,820 --> 00:00:44,820 And then we spend the entire day kind of digging 20 00:00:44,820 --> 00:00:48,200 into what we got out of it, both from a neurotypical perspective 21 00:00:48,200 --> 00:00:51,870 and an autistic perspective. 22 00:00:51,870 --> 00:00:54,913 They basically show that there was no significant eye fixation 23 00:00:54,913 --> 00:00:56,580 difference between the two groups, which 24 00:00:56,580 --> 00:00:59,070 is a very surprising finding. 25 00:00:59,070 --> 00:01:04,400 A-C-T. I find the obsession with eye contact-- 26 00:01:04,400 --> 00:01:06,590 N-G-- to be annoying. 27 00:01:06,590 --> 00:01:12,590 M-A-L. I believe it is about NTs wanting us to look normal. 28 00:01:12,590 --> 00:01:14,810 One of the goals is to get students to think about, 29 00:01:14,810 --> 00:01:16,550 what do you do when the science doesn't 30 00:01:16,550 --> 00:01:18,005 match the lived experience? 31 00:01:18,005 --> 00:01:20,630 It's a really wide misconception that, if you're not displaying 32 00:01:20,630 --> 00:01:22,970 interest in a neurotypical way, if you're not, 33 00:01:22,970 --> 00:01:25,387 for instance, making eye contact or you're not verbalizing 34 00:01:25,387 --> 00:01:26,928 something that you want to verbalize, 35 00:01:26,928 --> 00:01:28,553 you're just not interested in engaging. 36 00:01:28,553 --> 00:01:30,220 But when you actually talk to these guys 37 00:01:30,220 --> 00:01:31,595 and you spend time with them, you 38 00:01:31,595 --> 00:01:33,803 find that, for many of them, nothing could be further 39 00:01:33,803 --> 00:01:34,440 from the truth. 40 00:01:34,440 --> 00:01:35,970 They're longing for social connection. 41 00:01:35,970 --> 00:01:37,053 They want to make friends. 42 00:01:37,053 --> 00:01:39,650 But their bodies just aren't able to cooperate in a way that 43 00:01:39,650 --> 00:01:41,032 allows them to do it. 44 00:01:41,032 --> 00:01:42,740 I think the most shocking thing continues 45 00:01:42,740 --> 00:01:46,023 to be how wrong I was about what it looks like to be listening 46 00:01:46,023 --> 00:01:47,690 and what it looks like to be interested. 47 00:01:47,690 --> 00:01:49,730 For the most part, the educational experience 48 00:01:49,730 --> 00:01:52,400 of autistic folks is one of separation 49 00:01:52,400 --> 00:01:54,370 from their typically developing peers. 50 00:01:54,370 --> 00:01:56,930 And I see our seminar as an example 51 00:01:56,930 --> 00:01:59,390 of how we can create an inclusive educational 52 00:01:59,390 --> 00:02:00,260 environment. 53 00:02:00,260 --> 00:02:02,510 Part of what has to happen is for society 54 00:02:02,510 --> 00:02:05,180 to make accommodations, for the neurotypical folks 55 00:02:05,180 --> 00:02:08,570 to learn ways to support autistic people as they are. 56 00:02:08,570 --> 00:02:09,992 If we come in with a baseline of, 57 00:02:09,992 --> 00:02:11,450 let's just see what this person can 58 00:02:11,450 --> 00:02:13,940 do, trust their capabilities, trust their interest, 59 00:02:13,940 --> 00:02:16,312 then I think we can create way more inclusive spaces 60 00:02:16,312 --> 00:02:18,770 because we don't bring in all of these preconceived notions 61 00:02:18,770 --> 00:02:21,610 about what someone can and can't do. 62 00:02:21,610 --> 00:02:28,049